the case of lupus & the Canadian disability system

Systemic lupus erythematosus [lupus- SLE][]
has genetic evidence, documentable symptoms and [dogs -lupus crosses species][] on it’s side. So you would think it would be a shoe in when it comes to proving a disability claim, right?
Not so!
Lupus is a hard diagnosis to prove [getting disability][] . Most doctors don’t run around ordering genetic tests for eg. Especially in the early days. So the rest of the diagnosis is a subjective reading of the presenting symptoms and the doctor’s prior experience with the condition. That causes issues with govt pensions on it’s own.
Lupus has chronic pain, and chronic fatigue, so holding down a job is hard. Canada Pension Plan – CPP (federal) has criteria that preclude you from getting benefits if your work history is sketchy. You have to have paid into it to get it. And YOU have to, not necessarily the person who’s plan you are on.
Then they say you have to show you have tried and been compliant to the standard treatments. Even though they are contra-indicated for pregnancy.
[side effects of NSAIDS][]

[side effects of anti malarial meds][]

Highest incidence of lupus is observed in women aged 20 to 40 years.
Then they make it harder by saying that weight gain while having documentable symptoms precludes you from gaining benefits.
AND that you have to show long term disability…
Then there is a question about how you GOT lupus and who should really pay for that…
[drug induced version of lupus][]

Lupus is a very serious condition.
Because it can lead to cardiovascular disease, lupus can kill women in their 20s by causing heart attacks and strokes.. People with lupus also can die at young ages due to infections that are related to the immune-suppressing drugs taken to control the disease.

So you can see why lupus is a hard nut to crack when it comes to getting a disability claim processed. Yet it is documentable, genetic, cross species and potentially morbid. AND there are similar conditions that have the same factors. Rheumatoid arthritis, Muscular Sclerosis for example.

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